Don't do it!!!!!!!!!!
Recently I went to the pub with some colleagues as a fare well gathering for a colleague. It was a hot sunny day and I did not drink to excess. 3-4 glasses of wine, a plate of chips and over a few hours.
I blacked out.
One minute we were talking about what we all thought, as children, what we would do as adults. This was about 5pm. I do not remember anything after that. The next thing I knew it was 9am in the morning.
Frightening.
This has only happened to me once before in my life, 12 years before. The circumstances were the same, a few drinks with friends in the sun. So MCAD people I can only assume that the heat is not good for us. Alcohol we should not have anyway but there we go!
It was probably the most frightening experience of my life. When I woke up, there were glucose tubes on the bed side where my husband had rubbed it into my gums to get my sugars up - how selfish of me to have done this to him. BUT how was I to know I would take such a dramatic turn.
At approximately 2pm the following day I started to vomit, and did so like clock work for the next 6 hours.
Was I pushing myself too hard at work and home? - yes but I find it difficult to turn off.
Should I have been drinking? - No, but as this had not happened to me since I was 17, I did not think.
Is it because of my kidneys? - Probably. I learnt a year ago that they do not work properly and probably never did but again in my naivety, I did not think anything of it.
What did I learn - Yes I may hurt myself temporarily (a few days - hopefully) but ultimately it was those who I love that I hurt. In my foolish way I did not think of them, what they must go through when my sugars drop.
I may almost be 30 but living with MCAD is difficult. All my life professionals have wanted to keep me in a bubble and been surprised I made it to 5. Obviously I thought I could take on anything as I had already beaten the odds. As I a wanting to start my on family has this lesson really hit home. I am not invincible, I have to be careful if I wish to continue defying the odds.
Look after yourself MCAD'ers. Our life is precious and we are lucky to get this far. Lets keep going!
Tuesday 21 July 2015
Wednesday 10 June 2015
Sorry it's been a while....
WOW!
I cannot believe that I started this blog with so few hits and now by freak accident found people have been messaging me. FYI - Replied to you all.
I am now more determined than ever to keep this going particularly as I enter a stage of my life scary to the norm......
I want to have a baby......well I am 30 in 5 months!
So since my last posts I found an amazing consultant in London, right next door to Great Ormond Street where I was diagnosed. He has given me a new lease of life and comfort in what I am (and plan) to do. Any UK readers I can give you his details if you are looking for a good doctor.
I have bought my own house and got married less than 2 weeks ago We MCAD peeps do not deal well with stress so just imagine all that in a year! Thanks to my wonderful Warren everything went well.
At one point this year I did feel I was on the cusp of going to hospital but the education I had given my now husband prevented that.
I was away on my friends Hen do and did not feel well. I had been drinking so most assumed it was that. It was norovirus. My friend (who was pregnant - poor thing) had to drive me home whist I continued to vomit in the back of her car. When I returned home my husband too thought this was the result of alcohol. This was only because of his lack of experience when I was extremely ill. I told him this was not the case and to call mum. He did and she was there in 10 minutes. One look and she saw the MCAD rearing its ugly head. Rather than take over she explained to my husband it was illness, what to do and call if I get worse.
She knew what she was doing. By this stage was vomiting (on cue) every 15 minutes, I could not support my head and my speech was slurred this continued for 16 hours (the worst I remember).
As soon as I could stomach anything my husband fed me a teaspoon of plain ice-cream every 30 minutes to get the sugar I so desperately needed back into me.
What did I learn from this - A lot of people (when you are young) see the side effects of MCAD a lot like people who are drunk. Always have someone with you or who you can contact that you trust. Others will ignore the signs and this is where us MCAD'ers stp into dangerous territory. Keep safe and trust your instincts.
I cannot believe that I started this blog with so few hits and now by freak accident found people have been messaging me. FYI - Replied to you all.
I am now more determined than ever to keep this going particularly as I enter a stage of my life scary to the norm......
I want to have a baby......well I am 30 in 5 months!
So since my last posts I found an amazing consultant in London, right next door to Great Ormond Street where I was diagnosed. He has given me a new lease of life and comfort in what I am (and plan) to do. Any UK readers I can give you his details if you are looking for a good doctor.
I have bought my own house and got married less than 2 weeks ago We MCAD peeps do not deal well with stress so just imagine all that in a year! Thanks to my wonderful Warren everything went well.
At one point this year I did feel I was on the cusp of going to hospital but the education I had given my now husband prevented that.
I was away on my friends Hen do and did not feel well. I had been drinking so most assumed it was that. It was norovirus. My friend (who was pregnant - poor thing) had to drive me home whist I continued to vomit in the back of her car. When I returned home my husband too thought this was the result of alcohol. This was only because of his lack of experience when I was extremely ill. I told him this was not the case and to call mum. He did and she was there in 10 minutes. One look and she saw the MCAD rearing its ugly head. Rather than take over she explained to my husband it was illness, what to do and call if I get worse.
She knew what she was doing. By this stage was vomiting (on cue) every 15 minutes, I could not support my head and my speech was slurred this continued for 16 hours (the worst I remember).
As soon as I could stomach anything my husband fed me a teaspoon of plain ice-cream every 30 minutes to get the sugar I so desperately needed back into me.
What did I learn from this - A lot of people (when you are young) see the side effects of MCAD a lot like people who are drunk. Always have someone with you or who you can contact that you trust. Others will ignore the signs and this is where us MCAD'ers stp into dangerous territory. Keep safe and trust your instincts.
Subscribe to:
Posts (Atom)